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Petition for an endometriosis strategy

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endometriosis, petition for national strategy, diagnosis takes too longSeven years for diagnosis is #TooLong and a huge injustice for the UK’s women and girls.

Endometriosis UK is calling for the UK government to create a National Strategy for endometriosis, a long-term condition.

This would set quality standards for endometriosis care and set out a clear clinical pathway for patients who have endometriosis.

A national strategy would reduce diagnosis time, raise awareness of the condition and improve the quality of services.

And it could promote a multi-disciplinary approach, support patients to take an active part in their care and develop an evidence base to improve outcomes.

Currently, the average time to diagnosis is 7 years. Campaigners consider that this is #TooLong and constitutes a huge injustice for women and girls across the country.

Women are suffering right now – with nowhere to turn. It is simply unacceptable.

Campaigner Carol Pearson wrote ‘In 2011, endometriosis cost me my career at the age of just 39.

‘I suffered excruciatingly painful periods and sex for years before I was finally diagnosed with severe endometriosis at the age of 33.

‘By then, my bowel and bladder were badly diseased from endometriosis.

‘I had a series of major surgeries and lost the lower part of my bowel and a lot of my bladder.

‘Late diagnosis left me unemployable and infertile from a common, yet unheard of, disease that affects 1 in 10 women.

‘It is as common as diabetes in women.

‘My symptoms started at the age of 11, but I wasn’t diagnosed until I was 33.

‘It doesn’t have to be this way.’

Please sign this petition to call on the government to take endometriosis seriously.

Campaigners also want to determine the total number of years that women have had to collectively wait for a diagnosis of endometriosis.

So please join the ‘Too Long’ donation campaign and tell Endometriosis UK how many years it took for you to be diagnosed with endometriosis.

Endometriosis UK needs to raise money to enable campaigners to continue to provide vital support services, reliable information and a community for those affected by endometriosis.

Over 20,000 of you have already signed the petition. Even if half of those who signed donated the average diagnosis time of 7 years (£7), £70,000 could be raised from this campaign.

Endometriosis UK receives minimal funding for the work it does and is financed almost entirely through donations and annual membership subscriptions. Please support it.

Thanks.

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