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Inquiry into endometriosis care starting

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Endometriosis UK, AllParty Parliamentary Group on Endometriosis, inquiry, NICE guidelines regarding minimum care ‘have yet to be implemented’.

Everyone with endometriosis is being urged to respond to a call for evidence after MPs have launched an inquiry into endometriosis.

The inquiry will see patients and healthcare practitioners share their first-hand experiences and advise the government on what steps need to be taken to ensure women with endometriosis are getting the right care at the right time.

The news follows a study conducted by the BBC which highlighted the potentially devastating impact endometriosis can have – including on education, career, and mental health.

BBC research in October 2019 found that of over 13,500 respondents, nearly all said it had badly affected their career, their sex life and their mental health; most said it had impacted on their education, most said they rely on prescription painkillers every month including potentially addictive opioids, and around half said they had experienced suicidal thoughts.

Endometriosis not only takes a shocking average of 7.5 years to diagnose, but it also costs the UK £8.2billion a year in treatment, loss of work and healthcare costs.

Endometriosis UK has called on the government to ensure that:

The NHS wakes up to the scale of endometriosis and plans services to support all those who need it;

The NAtional Institute for Health and Care Excellence (NICE) Guidelines on ‘Endometriosis: Diagnosis and Management’, from 2017, are properly implemented across the UK. These state the minimum care those with the disease should have access to, but have yet to be fully implemented; and

There is investment in research to find the cause of the disease, better treatment and management options, and one day a cure.

The new inquiry will be led by the All Party Parliamentary Group (APPG) on Endometriosis with support from Endometriosis UK, and will investigate the many challenges facing those with endometriosis, and what steps the government needs to take to turn this around.

Sir David Amess MP, Chair of the APPG on Endometriosis, said: “The APPG is delighted to give women with endometriosis and healthcare experts the opportunity to share their first-hand experiences of endometriosis so we can produce a set of recommendations to the government.

“The APPG is committed to raising awareness of the condition and representing the views of those affected and we urge as many people to come forward as possible to respond to the inquiry”.

Emma Cox, CEO of Endometriosis UK, said: “This inquiry is a welcome opportunity for the government and NHS to get real about the impact of endometriosis on individuals and society, and to take it seriously.

“The inquiry provides the government with the opportunity to deliver recommendations for much needed improvements for the diagnosis, treatment and support of 1.5 million women living with the disease – and reduce the suffering of future generations.”

And she urges women with endometriosis to take part in the survey. This is a huge opportunity to push for real change for people affected by endometriosis and shape the way care is delivered in the future.

To respond to the call for evidence, click here.

For help or support now, click here.

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